Monday, March 22, 2010

endo/update

thanks to babyinterrupted for posting the link to this new endometriosis study.
please sign up to participate if you have been diagnosed with/are suspected of having endo. we have to support studies like this if we expect them to make strides in helping us deal with and diagnose this disease earlier. 

this study's aim is to be able to diagnose endo without surgery. WITHOUT SURGERY OMG.

how different my life would be if this had come along before 2004...

all you have to agree to do if chosen to participate is provide a sample of your saliva.

please help if you can and spread the word...

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i spoke to my dear friend today and as expected, she is still reeling from the shock of losing her little boy on friday. she asked me if it will ever get better because everyday she just feels worse :(
the poor thing. i would take her pain on myself if i could. i told her that it could feel like that for a while. i told her that the longing and the hurt never goes away, but that it does get easier and it doesn't stay as overwhelmingly painful forever. the hope in her voice when i said that was heartbreaking. i know the feeling of being buried in grief and i would do anything to save her from that sick sinking feeling. i cried with her.
she says it isn't real yet, she's wishing that its all a dream. i told her there is nothing more that i could wish for her than to wake up and have this all be a nightmare. i know how she feels (even if i don't know how she feels). 
i told her that right now she needs to take things day by day.  i told her that i will be there for her and to call me, day or night if she needs to talk.

i hope i said the right things.

5 comments:

callmemama said...

I'm so sorry to hear about your friend. It's such a helpless feeling seeing someone in pain and not being able to make them feel better! It sounds like you are saying the right things - I know she appreciates you being there for her, and she'll need you even more I'm sure in the next weeks and months.

PB&J said...

You said the right things.. All of us feel all over again the grief. You are right it does not go away... and when a new family looses a child... we all feel it for them (not the same... but the same) My heart reaches... I can only hope that she feels peace soon.

Ms2Mrs said...

I have a very close friend who suffers with Endo quite severely. I've passed on the info to her. Thanks so much for keeping us informed.

Regarding the loss of your friend's son. You are doing all the 'right' things in the situation. Just be there and support her when needed.

I'm a huge believer in sometimes we don't understand why things happen to us, only to have a dear friend/loved one suffer through the same thing. Does that even make sense?

Keep doing what you're doing, I'm sure your friend appreciates it. You know how to reach me if you need anything.

B said...

oh, lis. what a terrible terrible thing for your friend to have to go through.

there are no right words - no words that will make it all better - but you know that. but what you said sounds perfect. what else is there to say?

i'm so so sorry for your friend.

why is life sometimes so cruel? it's so, so unfair.

Alexicographer said...

Could you (or have you) provide(d) your friend with the URL to the GITW website? I always feel a bit dumb passing on bloglinks, but the blog world has been such a support to me in my infertility journey that I do it anyway.

My thoughts are with you, and with your friend.